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Please take a moment to introduce yourself to the community. Everyone here has something to share about Achalasia. For the discussion boards, we ask that you keep your full name and location private.
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192 replies
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This post is for Drew. I any sending prayers your way hoping your surgery is a success. My life has never been better since the H.M and I hope yours goes well also.
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Hi, My name is Drew. 41 year old male. I was diagnosed with Achalasia last month after 3 really hard years. This last year has been the worst. I have H.M. scheduled for May 24, 2013. Really hard living like this.. I'm scared but hopefull.
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HI, my Mom has "A" and refuses surgery or botox or even going back to the Doc. She was diagnosed back in 1980 with a "bad hiatal hernia"... it has gotten worse over the years. I insisted on her having the tests done to see what was really going on when the choking at night was more and more frequent. She finally had the barium test last year, and the doctor was "excited"... yes, excited to do more tests since he hadn't seen this severe of a case before. My mom freaked out and won't go back. I am her care-giver. She is at the point where she cannot eat meats, fish, or even some veggies. I am worried about her. I hope by joining this group I will learn more on the disease. I have done research but it always helps to know you're not alone. I have her on Ensure and smoothies that seem to be going ok. But she has to eat very small amounts at a time. Any info or suggestions on meals would be greatly appreciated. Hugs.
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My husband has Crycopharyngeal achalasia... honestly wish he had the other so we could can be helped by a Hellar Myotomy. His upper esophageal sphincter is hypertonic and he has struggled with it for the last 20 years. It has gotten progressively worse and now he has a gastrostomy feeding tube. He just had botox injecteions to the UES 2 weeks ago which failed. We've been to speech pathos, GI specialists, ENTs (a local jerk actually had the audacity to tell my husband he had "globus hystericus" and he was imaging his choking.) We finally found a surgical ENT who actually scoped my husband and took pictures that showed an OBVIOUSLY malformed UES... this is when the botox was attempted... and failed. Are there any physicians on this site who specialize in CP Achalasia? We desperately need an expert. I'm a research nurse with an MSN. I have searched and searched and found very limited data on retrospective trials that indicate that failed botox pts may very well have successful myotomys of teh CP. Need to know if any one has experinced this type of achalasia and what was done.
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Hi my name is Linda, I've been newly diagnosed.. a little scared.
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Hi, My name is Richie L and have Achalasia for the past 15 years!
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My name is Pat, I was diagnosed with Achalsia in August, 2011 after ten months. Had the nomal tests but, why did it take so long? I actually tried to sue my GI doctor! Ten long months, lost thirty something pounds, and many panick attacks including four emergency room visits (these visits never helped me, but, each time I literally thought I would suffocate to death) Had the nissen fundaplication in September, 2011 and did a lot better until I lost my job in August, 2012 and now the acid reflux is back even at night.
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George, 53 yo I have "A" since 1990. Had a Heller done in 92. Feeling ok for the exception of a few spasms each month. Some of the spasms (if I dont catch them in time)last for up to two days. Had to quit my job as a corrections officer in 2004 due to the spasms. My Doctor Dr. Plumer out of Middltown NY gave me no support. Basically he couldnt help me and my spasms, and was reluctant to provide me with medical certification for my employer to justify any of my absences from work. Some Doctors just dont give a crap about their patience.
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My name is Joel. I was diagnosed with Achalasia back last fall and just had Heller Myotomy with partial fundo back in March 2012. What I can say so far, is that it is about 95% better eating and enjoying meals from before surgery. Certain foods are still an issue like tough meats, popcorn and sharp chips. What works are non-heavy breads, chicken, marinated steaks; and now have an issue of eating too fast and can create excessive gas / bloating. What I recommend is finding a Center that specializes in this procedure. In New England, I picked Mass General where they specialize in this; and worth the travel. I have already gained 15 LBS and while the 1st month after surgery 'is' painful (like any surgery), it is highly recommended if life when eating & sleeping is painful. Regards JS
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