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Liza,
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Hi all, my name is Dee, and I to suffer from severe chronic pain. I was in a "minor" auto accident that herniated L-5/S-1 and had 5 discectomy's befor having those fused, then had L-4/L-5 fused, the pins cam loose had them redone, suffer from DDD and severe irritable bowel. I have been throu 11 back surgery's, have neuorpathy in my right leg and left foot. I am now permanetly disabled after being a paramedic for 25 years, this has been since 9/2002. My family says I am addicted to pain meds, and I have been to many pain docs, but have a great one now. I am still dealing with being unable to work as I loved to work and disabilty pays very little as you may know. I also suffer from depression, my family is not supportive at all. Recently I was hospitalized for abdominal problems twice last month, the ER staff were very kind knowing I am a chronic pain patient and when I was admitted my pain doc came in to manage my pain. I am on Dilaudid 20 mg extended relieve plus oxyconce for breakthrough pain and neurontin, elavil, several smooth muscle relaxants. I am opoid tolerant so morphine does not work. While in the hospital even though my pain doc ordered IV dilaudid, the RN's would not give it to me they would start with 5 mg oxycodone, then 20 mog oxycontin ( which I am tolerant to) and hold off giving me the iv dilaudid. By that time I was feeling withdrawal effects. They really need updating on chronic pain as much research I have done and my current pain doc states it is a disease like diabetes, heart diasease etc.. I hate labels, and I am very depressed because my limitations are becoming real. I keep you all in my prayers and can relate to most as I to have multiple system disorders. Pain sucks, but being labeled I think is worse. Keep your chins up and hopefully I can help soemone at sometime, be blessd with some easing of pain dee
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Hi every one it's Rya. I forgot you all don't know the entire story I'm new to this group. Anyway, I have been going to pain management and have tried many of the pain pills out there. I am very fortunate I have a doctor who prescibes meds for the nerve damage in my back as they used that muscle to help create a breast. Unfortunatly the pain pills do make me sleep a lot but hey it's better than suffering in pain. I didn't realize that there are people out there like us in pain that can not get pain meds until I started reading these type of groups on the internet. I can't believe a doctor would make a person in pain suffer. They should be shot (just kidding) The doctor that made that comment to me was a plastic surgeon. My masectomy breast is encapsulated and I need to have it taken care of. I have put it off for 2yrs now. It is so tight and hard there are times I have woke up in the middle of the night and actually got a butcher knife and thought of puncturing it to realese the pain. Honestly I am petrified to have this surgery performed even though this surgery would be nothing like the first one that has put me in chronic pain and destroyed my life. I don't trust plastic surgeons. When I had the reconstruction done I kept telling the plastic surgeon something was wrong I felt like a twisted pretzel and the pain was unbearable, his policy was he prescibed pain pills for 1-week. I kept calling and telling them how much pain I was in and they were very cold hearted. On my follow up visits my husband and I kept telling him something was not right that the pain was unbearable he told me I needed to see a physciatrist, needless to say he never finished the procedure he kept makeing up excuses that my inplant was not in etc. My oncologis found a sureon to finish the procedure she also prescibed pain pills to me for a while then told me about this great pain specialist I shoud see. Sorry it's so long but there's my story. Wow I have never written it out before. Please excuse any of the mispelled words. It's killing me just typing this I have to lay on the couch with ice and get up a few times and move around. Sorry to bore you guys but I'll tell you what I feel good to have written that for some reason.
Lisa
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I suppose I was lucky a few years back to be referred to a pain clinic,
I don't know what the answer is, I guess we each need to deal with our
-----Original Message-----
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hi there, i understand what your going through.being in pain everyday , and struggeling to live the way your used to living , really takes its toll on you, physicily and mentally.it sounds like your doctor is trying to tell you that there are people out there who have it worse so you shouldnt complain, that may be true ,but not very comforting to hear.there are alot of doctors who are afraid to treat pain, because they would rather you leave there office in pain then leave there office addicted to pain meds.i did read that they are coming out with newer pain meds that cant be abused, maybe for us chronic pain sufferers, thats a good thing. then the doctors wont be so scared to help up manage our pain.try to hang in there, and stay positive.the summer months are here, usually for the most of us, these are the "good" months, with the pain being more tolerable.if your doctor wont help you even try to manage your pain, so you can live a somewhat good life, see another one, or get a referral to a pain clinic if you have to.you do have options, remember that.i hope this was somewhat helpful,good luck.
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Hi every one, I have been in chronic pain 8yrs now. I had breast cancer they performed a masectomy with reconstruction surgery. They used my back muscle and cut a nerve the pain is unbearable. My breast is encapsulated I went to a breast surgeon last month and he said to me that no body should suffer in pain and he was going to do some reasearch on the pain I have in my back. Yesterdays appointment was totaly different he said to me you want to see pain I should bring you to the V A hospital. The thing is my husband says the same thing to me all the time. I don't get it does any one care I just want to die I hate liveing in this much pain. Lisa
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It's hard to predict. The rate of decline is highly variable among individuals. Make sure you are well-nourished, but keep your weight at a minimum if possible. Your best aerobic exercise is probably swimming or perhaps a stationary bike. Avoid lifting heavy stuff, and any movements that cause impact to your frame. My wife's aunt was diagnosed with it when she was in her early 70s. She's 86 now, and still traveling the world!
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