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Hi, im new to this site, but was diagonsed with having sle 'officially' about 3 years ago, but have been suffering for a lot longer than that- as well as going for numerous tests over the years. I find it really difficult to understand lupus, and most of the time try and ignore it- although its fairly impossible to when your body aches, you feel tired, have random mood swings and generally feel pretty fed up about it. Symptom wise physically i mainly suffer with a really painful lower back- feeling as if i have a band of 'swollen tissue' accross my back. My wrists, knuckles and joints hurt, and my muscles seem quite tight and painful a lot of the time. Another physical symptom i have real problems with is lumps that come and go down the side of my neck. my neck hurts, and it feels as if there are two lobes at the back of my head that throb and become really sore even to touch...does anyone else share these really irritating things?
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Oh my goodness you are BLUE!!!!
Hey! Question on the joint pain......does it fluctuate or is it constant........or does this vary from spot to spot and person to person????
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LQQk at the board............I am now a member of the Wolf pack.....I am BLUE too! (Hmmm, in fact my fingers are now the same color) The weather here is C O L D!
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Mel your a hoot :D I hate going to the ists!!! I find it goes in cycles........... I have to see so many of those dreaded "ists" for a period of time and then I don't want to see or hear from one for as long as I can hold on. Seems as soon as yu need to see one , it opens the door to another bombardment of the "ists". ;s
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Truthfully, most would agree I am a LITTLE more than luppy! <smiling> I had to go to my oncologist yesterday for an array of blood work. I asked him, since we have now had a "medical relationship" since 1994, if the lupus could be attacking the cancer cells in my bone marrow thus making them lower and then higher again; fighting any cancer. He thought for a minute, and said, I don't know, but it could be possible." I happen to be a very bad patient. He then asked me the following: Raise your hand if the answer is YES. When was the last time you had a mammo done? When did you see your gastro doc? Your heart doctor? Your neurologist? Your Gyn? Your Rheum? Your therapist? I didn't answer. <hands down> He said, "Raise you hand if you have seen anyone." Me: I only see one "ist" and that's you!
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Yes us Lupies might appear to be a little loopy but were not REALLY :)
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Hi all -- this is such a wonderful site.!! I'm so glad to know I'm not a crazy bird. All of you have symptoms similar to mine. Of course, all of us have a little something different. People who are not lupies, look at us like we're whiners and complainers. (worse yet - according to some non-lupies, we take way too many drugs)It's so good to have people who understand. .
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Hi Vic and everyone else on the board. All of you are complaining of the same things as me. This site is awesome....
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Nanny, This is what I feel you should do: Take ALL of your meds...even any vitamins and over the counter ones....and bring them to your pharmacist. You might be having an interaction drug problem. A pharmacist, in my opinion, knows more about the combination of the drugs than the docs. If your ears and throat hurt, it could be you're actually just sick....like normal sick. Did you go to the doctor for your throat and ears and have him/her check them out? I feel you should. There's a lot of coughs going around and throat aches. I know that when my throat hurts, that's not the lupus. I am getting sick, and that's when I take an antibiotic. Am I the only one that suffers from fevers?????
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I would love it but my diabetes wouldn't hee hee!
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Yes, I must be sweet as a cone filled with that puffy stuff one gets at a circus or fair! Cotton candy... Oh, do you want me to throw some to you>?
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