Gazela and Magsie,
First let me commend you Gazela for what you were able to accomplish through the tv show and the article in the magazine. This does, as Magsie said, put this out in the general public, maybe instead of someone being so rude and hateful, they may stop and wonder if that person has this disorder and be a little more considerate and understanding. The best point is the primary ones which need to hear it will , "THE DOCTORS", who have insinuated our mental instablity for all this time will now take a new look into our claims. More publicity could even institute grants to be made availabe for researchers to study and find a cure for this. I'm with you Magsie, I am 57 and have suffered with this disorder since age 24. I have tried some of the treatments suggested and have found slight success. Gazela you are absolutely right about a restricted diet. I can be doing fine, taking two a day of Nullo, 1 multi vit,, calcium, magnesium and zinc combination, acidopilus and biatin. This seems to work fine until I make the mistake of not thinking of the food I'm eating, being use to my reg. diet. When I eat wrong it doesn't matter what suppliment I take or how much i clean and bathe, it's just pure bad breath from hades and a dog poo smell. The charcoal deal, I'm not so sure of this pill. I took them for a while and one thing that I noticed was that after about 5-7 days of taking the char. I couldn't smell, I mean literally I could walk in a room and let's say an incense was burning, could not smell it. So wheter or not it elemnated my body smell I couldn't tell you, but I do know that it affected my ability to smell and taste. I never tested the charcoal while being out in general public, should have, just didn't. Gazela, I'm not trying to make you feel paranoid again, because I know that the mental strain of what we have been thourgh in our past would be a hard thing to shake off overnight, but maybe you should pay attention again when you are out and about and see if anyone is acting as though you have an odor then you will know if it is because the charcoal did the same thing to you, took away your sense of smell. I pray that this is not the case because I would love for you regiment to be the one that makes us confident enough to participate in the normal world without extreme emotional upset and embarassment over a condition we can do nothing about. Please let me know what you discover with the charcoal dill. Wishing only the best for us all. God Bless us all, every stinking one!! LOL