TMAU in the Press & Good results from Treatment
Firstly I have recently been on The ONE SHOW on BBC1 regarding my story of TMAU and what it is and how hard it is to live with and treat etc. This can be Viewed on BBC i player.
The story was put over with a lot of tact and hopefully the more people who know about this terrible complaint the better for all of us with it.
I have also just been in a Magazine called CHAT with another look at the same problem, again the more that know the better it gets. This can be viewed on the website tmau.org.uk then just follow the link.
With regards to the treatment I have been trying since the end of last year, I have some really promising good news, it seems to be working and making my life a great deal easier.
I have been sticking to a very strict diet, and I mean strict ! It is hard to find ways to get the protein I need but with a lot of thought and effort I have managed. This is a diet to limit the amount of Choline I intake, it also cuts out almost comlpetely any Trimethylamine, ie; from seafood etc. I also have to avoid food with Lethicine (E322) found in many ready prepared foods.
Then I take a course of antibiotics (Neomycin,Metronidazole or Amoxicllin) for 2 weeks, this is to lower the amount of Trimethylamine in my body. After that I take probioticts to help restore the good bacteria in my stomach. I also take Riboflavin Vitamin B2 capsules every day.
This along with my daily Charcoal with either, Champex, Odor-Cleanse, Body-Mints or Chlorofresh and very elaborate cleanliness routine have certainly had a very good effect.
At the momment I find it very difficult to be confident that it is has totally cleared the odour, but I do feel it has lowered it to a much more tollerable level. I have started to do a few things that I would not have done before the treatment started.
Well I can only hope this is of some interest and use for any other sufferers and helps in some way?
Good luck everyone
Trimethylaminuria (conditions) Choline (treatments) Neomycin (treatments) Charcoal (treatments) Metronidazole (treatments) Riboflavin (treatments) Antibiotics (treatments)
Gazela and Magsie,
You're a real champion guy for having the guts to go on TV and spread the word about this condition. The video of your TV appearance can be seen by other sufferers around the world and it gives people such hope to know that the condition's become more widely known by others - including doctors 'cause they often don't believe us when we complain about our body odours, 'cause other people have been complaining about us in a threatening way sometimes too.
My results were:-
it feels really good to have these results in confirmation that I do have an odour problem, that its not just in my head, and the fact the other people at work complain and dislike me is not just in my head either.....