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Please take a moment to introduce yourself to the community. Everyone here has something to share about Club Foot. For the discussion boards, we ask that you keep your full name and location private.

ajer
  • ajer
  • 454 care points
  • 1 3
created Apr 11 '07

26 replies

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Hello everyone! We are a family of 5 in total - all 3 boys - 2 of whom were born with club foot in one form or another. We just started up a blog about this subject but I won't mention it since I'm not sure yet if it's allowed.
Just hoping to pass on some useful information and answer any questions new parents might have who are going through this.
All the best.

our3sonsrock
created Feb 21 '08
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We were young parents... aged 16 & 19 when our second child was born with recurring bilated clubbed foot;
36 & 1/2 years ag

For the first 2 years of his life he went through a myraid of doctors using different techniques. When he was 2 we finally got a Mason to sponser him for the Shriners hospital in San Francisco, (It required sponsership back then).. He was their patient till his last surgery at 17, when they told him they thought he could only have 1 more surgery at about the age of 35...Fast forward to today... he is 36 & in urgent need of the surgery now... he is in immediate danger of cord rupture in his right foot... that is the foot with all the surgery, as well he now needs the surgery in the left foot too. He has other recently discovered problems with the feet that are compounding his situation.
Today they have advanced techniques where I understand they can use cadaver donor tissure or even the heart strings from a horse in repairing these type of conditions.
The problem being for him his the cost of surgeries... health coverage & survival... he has been trying for disability for a while... the State where he resides doesn't have help with medical at all for Adults unless your minor children are dependant on you & in your home.
There are a lot of caring, concerned doctors & Staff. Between the local hospital & doctor's they are all working some type of repayment plan.... So at the least they can get him through this first adult surgery & stop the immediate threat of rupture.
There is always advanced treatments & hope... Lots of people go through the same or similar situation.

nyssacouple
created Oct 07 '07
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Hi my name is Shelly and I have 2 wonderful girls. One was born with a club foot on Dec 20,2000. She had went for casting from 7 days till her corrective surgery at 10 months old. But now she is haveing problems with her foot it is starting to turn inward again. She is now 6.5 years old, is this common??

holliday
created Jul 11 '07
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Hello everyone My name is Annie I'm here to show my support and to learn more about...well everything I can!

AnnieLMG
created Jul 10 '07
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I am the proud mother of 2 beautiful boys. My oldest is now 2.5 years old, and was born with bilateral clubbed feet. He went through casting for approximately 2 months and then had a tenotomy performed. He currently wears a brace at night, but we are having a lot of difficulty with it. I need suggestions on how you all get your children to keep their brace on. He's a big boy (53 pounds), and if we are unable to keep his shoes on him, he may need another surgery and not be able to walk for a couple of months. I am also a military wife, and I am concerned of how to take care of two young children by myself when he may not be able to walk.

LBW
  • LBW
  • 0 care points
created Jul 06 '07
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I just had a 29-week ultrasounds and learned that our baby girl's right foot is club.

db67
  • db67
  • 0 care points
created Jun 25 '07
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Hello everyone,
I am a member of the medical community as well as a mother of one child. My daughter was treated for clubfoot a week after birth. It affects only her right foot and is a milder form of the condition. I am currently developing a new prosthetic to treat the condition, mild to severe, bi-lateral or otherwise. This prosthetic would be used in place of the current bar and shoes. I would like to hear your feedback on the current treatment. Changes you would like to see, things you like and don't like about the bar and shoes. Your information will be compiled on an anonymous basis for my research. Due to patents and laws of disclosure I cannot give any specifics about the new product at this time.

Thank you.

mrsashba
created Jun 21 '07
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For all the parents with babies that have clubfeet, these will help through the casting period BIG TIME! Believe me I know, so I wanted to share it with everyone especially since I have a very good coupon code for them.

www.babylegs.net

Use these on your baby's casts and with the denis browne bar.

I used them to:
-cover the ugly casts with something fun, cute and stylish
-protect the cast from getting soiled, with the casts being so dangerously close to the diaper lol
-protect myself from how scratchy icky the casts are.
-help me forget that my daughter had casts on

The coupon code is "BOGO" ebter it into the coupon code entry before checkout

Most of the leggings are $12 each but with this coupon code you can get two for the price of one plus $3 shipping. Stock up! I am. You can make as many individual purchases as you want. Its basically $12 off a purchase of $24 or more in case you're looking at nore expensive pair. Try it, you won't be disapointed

obscurevision
created Jun 20 '07
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Our daughter has club feet and we are interested in more information

hemsheimer
created Jun 19 '07
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My dd, who is now 5 months old, was born with two clubbed feet. We've gone through most of the casting and about to have a tenotomy.

JenMah
created Jun 19 '07

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